2021

Well here we are, it's 2021.  

I turned 33 yesterday.  

The pandemic is in it's second wave and we're in another lockdown with restrictions and closures.  

The US politics are a mess, there were riots today.  

I just finished a new MS therapy!

Let's rewind to last September.  I called the MRI department to make sure my November MRI was still booked (medical appointments were being cancelled or rescheduled due to Covid) and they actually had a cancellation the next night.  The MRI was quick and I finally got some information about my results from my family doctor - new lesions. Again. That's new lesions on every MRI for the last 3-4 years. UGH.  I later called my MS Neuro team and went to see them a few weeks later.

New lesions meant Tecfidera was not working. Which we suspected last year...

Rebif/Injectables - failed.

Aubagio - failed.

Tecfidera. - failed.

It was decided that the first line medications weren't doing what we wanted them to so we had to step it up to a second line. I was given two choices and a few weeks to make my decision.

1 - Tysabri - monthly infusions for the rest of my life, unless I become JCV positive as it increased a risk of PML.

2 - Mavenclad - 2 treatment courses over a 2 year period that is shown to show less disease progression for 4 years.

After multiple pros/cons lists, talks with friends and family, and plenty of research, I finally decided on Mavenclad.  Stay tuned for my Mavenclad journey!