Tuesday 30 July 2013

what's wrong with you?!

    Most of my friends, coworkers and family know what's "wrong" with me.  Either they've asked, found out through the grape vine or I've flat out told them.  It makes it easier for me knowing that I don't have to explain to them why I can't stay out to late on Sunday/Tuesday/Thursday, or why I'm so tired at 2pm in the afternoon.  Since moving to a new city and making new friends, I'm being questioned about my injection marks or excuses regarding not going out and I simply answer with "it's a long story" or "don't worry about it".  Now that seems like a pretty simple answer, but no, that usually sparks a reply of "I've got time, tell me".

   Basically I have an autoimmune disorder called multiple sclerosis.  The wiring in my brain "short circuits" and some signals don't get sent properly to the rest of my body.  Symptoms of MS can range from muscle weakness, loss in coordination, fatigue, vision problems and even paralysis.  Some people experience acute symptoms and others have chronic symptoms that don't always go away.  There is no way to know when another relapse can happen or even what part of the body it will affect.

     Neither a cause or cure is known and I take a medication that slows down the progression of the disease.  It is taken by subcutaneous injection (just below the skin) three times a week and there are a few side effects which I try to sleep off with an ibuprofen.  I'm not contagious nor am I dying.  I've learned to accept this disease and am in a much better place than I was over a year ago (proof of this is in my very first blog posts).  I can finally talk about MS and I am always willing to answer questions to the best of my knowledge.  If it wasn't for the support of my friends, family, colleagues and twitter crew, I would not be in the zone I am today.  I'm so grateful; everything happens for a reason and you must learn to adapt and overcome. 

   #beatMS