Tuesday 12 November 2013

don't forget to remember me



There are days that I forget I even have MS.  It doesn't happen too often, and especially not on Tuesday, Thursday or Sunday since my phone reminds me it's shot night.  I don't forget when I'm at the gym running on the treadmill and my legs go numb or when I'm carrying something and I realize I can't feel my hands.  But the odd time I'm so in the moment that I completely forget all about my MS symptoms.  Oh how I love those days.

People that know about my disease tend to forget too - although, way more often.  I'm coming across this in my workplace at the moment.  I'm so close to emailing my coworkers and management "I HAVE MS. LEAVE ME ALONE OR LEND ME A HAND."  Most of my colleagues have known I have MS since my diagnosis and not too long ago I came out to the rest of the company.  But the novelty of my post they all read over 6 months ago has warn off.  I find that now if I ever ask for a bit of help, I get eye rolls.  Even my boss has managed to push me to my limit and has completely *stressed me out that I've had to see my physician for a prescription of something to calm me down.  (*Stress + MS = bad) 

I guess I am mostly to blame.  I'm the type of person that if you ask me to jump I ask you how high.  I'm that person that shows up early, works through lunch and stays later.  I offer to help, even when I don't have time to - I always make time to help.  People notice this and forget that I still get the worst stabbing pain behind my eye halfway through the day or that I've dropped the pen/paper clip/business card numerous times because my hands are numb or even that I've stumbled into the same wall at least four times before lunch.  These little symptoms can often impact my whole day and slow me down.

MS is an invisible disease and as much as I don't want to get treated differently, I do want people to sometimes back off.  Is it so bad I feel this way?  Are there days you just want to remind people??

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