Monday 11 March 2024

Dear Nina....

Dear Nina, if you notice any problems with your legs, please call your neuro asap.  I promise, if it didn't get better after a few days, it probably means something is wrong. You know that you have no problems walking around a Target or in the parking lot without the need of a shopping cart.  That wasn't normal.

But hey, guess we get to remind you about the steroids now.

Because the legs have been bothersome for a few weeks (and essentially the worst they've been, especially when walking to the bathroom was such a struggle), it didn't seem like such a shock when the Nurse Practitioner said the word "steroids" to you.

Day one: new found energy, like move furniture and do some fancy stretches in the middle of the living room energy.

Day two: slowing down, looking forward to your next dose of steroids, hoping for the same burst of energy.

Day three: realize the energy didn't come again, get a little more rage-y and tired.

Day four: super rage rolls in, you're so uncomfortable because you haven't peed in 6 hours, and your legs are still bothering you.

Day five: here's the day where you'll feel like someone pushed you down a spiral staircase, and then beat you with a pinata stick, just to make sure you were down.  Muscles hurt that haven't hurt before, legs are still super heavy, and the fatigue is out of this world. With the time change, you almost went to bed at 7pm, but forced yourself to stay up until 9.  You won't sleep though, because you'll have the urge to pee shortly after you do fall asleep. every 40 minutes.

Day six: exhaustion. It took almost all day just to wake up. Muscles still hurt, your head feels like it might implode, and your legs are still so fricken heavy.



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